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Suggested Platform Planks
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Recommendations for Washington from the Alzheimer’s Association
Source: http://act.alz.org/site/DocServer/CAREGIVERS.pdf?docID=4644
Create a Washington State-specific “road map” for family caregivers, providing information about what to expect over time to help plan for the future.
Provide dementia-specific information and assistance for family caregivers of people living with dementia.
Prepare and disseminate simple documents for clinical teams that identify community resources and educational information that are available to support care partners of people with dementia.
Increase availability and delivery systems of education for family members about dementia communications skills, understanding and responding to non-verbal cues and behaviors, and home care activities such as assuring home safety, managing medications, using effective approaches for personal care and oral health needs, addressing hearing loss and other sensory deficits, and incorporating physical and meaningful activity into the day.
Identify and make educational programs and support services for diverse caregivers more available across the state.
Engage tribal representatives to explore the needs of tribal families caring for people with dementia to develop culturally relevant supports and services.
Provide education and supports for older family caregivers who provide primary care for their adult children or siblings with developmental disabilities and dementia.
Increase awareness among the public and community agencies that the Family Caregiver Support Program is available and helps caregivers of people with dementia at any age.
Inform caregivers and patients about the Family and Medical Leave Act, long-term care insurance, the benefits of advance legal and financial planning, and existing support programs through agency websites, educational forums, service networks, and the media.
Increase awareness of the need to involve care partners/caregivers in every step of care planning and goal setting for the person with cognitive impairment and dementia.
Engage employers and those responsible for developing and implementing Employee Assistance Programs about the issues facing family caregivers and encourage them to incorporate policies such as flextime, telecommuting, referral services, and on-site support programs.
Increase clinician awareness about regular systematic assessment of care partner stress, ability, knowledge and skills to provide care.
Increase awareness among caregivers of both public and private programs that offer professional guidance in understanding the diagnosis and how to access services and plan for the future.
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2016 Family Caregiver Platform Project 